Modern epidemiological analyses to understand and combat the spread of disease depend critically on access to, and use of, data. Rapidly evolving data, such as data streams changing during a disease outbreak, are particularly challenging. Data management is further complicated by data being imprecisely identified when used. Public trust in policy decisions resulting from such analyses is easily damaged and is often low, with cynicism arising where claims of "following the science" are made without accompanying evidence. Tracing the provenance of such decisions back through open software to primary data would clarify this evidence, enhancing the transparency of the decision-making process. Here, we demonstrate a Findable, Accessible, Interoperable and Reusable (FAIR) data pipeline developed during the COVID-19 pandemic that allows easy annotation of data as they are consumed by analyses, while tracing the provenance of scientific outputs back through the analytical source code to data sources. Such a tool provides a mechanism for the public, and fellow scientists, to better assess the trust that should be placed in scientific evidence, while allowing scientists to support policy-makers in openly justifying their decisions. We believe that tools such as this should be promoted for use across all areas of policy-facing research.
翻译:现代流行病学分析,以了解和遏制疾病的传播,关键取决于能否获得和使用数据。迅速演变的数据,例如疾病爆发期间不断变化的数据流,尤其具有挑战性。数据管理由于使用时不精确地查明数据而变得更加复杂。公众对这种分析所产生的政策决定的信任很容易受损,而且往往很低,在没有附带证据的情况下提出“遵循科学”的主张时产生了怀疑。通过公开软件将这类决定的来源追溯到初级数据将澄清这一证据,提高决策过程的透明度。在这里,我们展示了在COVID-19大流行期间开发的可查找的、可获取的、可互操作和可再使用的数据管道(FAIR)数据管道,便于说明分析所消耗的数据,同时通过分析源代码追溯科学产出的来源。这种工具为公众和科学家们提供了一个机制,以更好地评估应当对科学证据的信任,同时使科学家能够支持决策者公开证明其决定的合理性。我们认为,应当推广这种工具,以便在政策研究的所有领域加以利用。