Data is everywhere but may not be accessible to everyone. Conventional data visualization tools and guidelines often do not actively consider the specific needs and abilities of people with Intellectual and Developmental Disabilities (IDD), leaving them excluded from data-driven activities and vulnerable to ethical issues. To understand the needs and challenges people with IDD have with data, we conducted 15 semi-structured interviews with individuals with IDD and their caregivers. Our algorithmic interview approach situated data in the lived experiences of people with IDD to uncover otherwise hidden data encounters in their everyday life. Drawing on findings and observations, we characterize how they conceptualize data, when and where they use data, and what barriers exist when they interact with data. We use our results as a lens to reimagine the role of visualization in data accessibility and establish a critical near-term research agenda for cognitively accessible visualization.
翻译:常规数据可视化工具和准则往往没有积极考虑智力和发育残疾者(IDD)的具体需要和能力,使他们被排除在数据驱动活动之外,容易受到伦理问题的影响。为了了解缺碘症患者的需求和挑战,我们与缺碘症患者及其照料者进行了15次半结构化访谈。我们的算法访谈方法将数据放在缺碘症患者的活体验中,以发现他们在日常生活中遇到的隐蔽数据。根据调查结果和观察,我们说明他们如何将数据概念化,何时和何处使用数据,在他们与数据互动时存在哪些障碍。我们用我们的结果作为透镜来重新构思可视化在数据可获取性中的作用,并为可认知的可视化制定关键的近期研究议程。</s>