Online health communities provide a knowledge exchange platform for a wide range of diseases and health conditions. Informational and emotional support helps forum participants orient around health issues beyond in-person doctor visits. So far, little is known about the relation between the level of participation and participants' contributions in online health communities. To gain insights on the issue, we analyzed 456 posts in 56 threads from the Dermatology sub-forum of an online health community. While low participation threads (short threads) revolved around solving an individual's health issue through diagnosis suggestions and medical advice, participants in high participation threads (long threads) built collective knowledge and a sense of community, typically discussing chronic and rare conditions that medical professionals were unfamiliar with or could not treat effectively. Our results suggest that in short threads an individual's health issue is addressed, while in long threads, sub-communities about specific rare and chronic diseases emerge. This has implications for the user interface design of health forums, which could be developed to better support community building elements, even in short threads.
翻译:在线健康社区为广泛的疾病和健康状况提供了一个知识交流平台; 信息和情感支持帮助论坛参与者围绕健康问题,超越医生亲自到访; 到目前为止,对于参与程度和参与者对在线健康社区的贡献之间的关系知之甚少; 为深入了解这一问题,我们分析了在线健康社区皮肤学分论坛56个线条中的456个文章; 参与程度低(短线)围绕通过诊断建议和医疗建议解决个人健康问题; 参与程度高(长线)的参与者建立了集体知识和社区感,通常讨论医务人员不熟悉或不能够有效治疗的长期和罕见条件; 我们的结果显示,在短线上,个人健康问题得到了处理,而在长线条下,出现了关于特定罕见和慢性疾病的子社区。 这对健康论坛的用户界面设计产生了影响,可以开发这些平台来更好地支持社区建设要素,即使是短线。