This study explores the design of Intelligent User Interfaces (IUIs) to address the profound existential loneliness of terminally ill individuals. While Human-Computer Interaction (HCI) has made inroads in "Thanatechnology," current research often focuses on practical aspects like digital legacy management, overlooking the subjective, existential needs of those facing death in isolation. To address this gap, we conducted in-depth qualitative interviews with 14 lonely, terminally ill individuals. Our core contributions are: (1) An empirically-grounded model articulating the complex psychological, practical, social, and spiritual needs of this group; (2) The "Three Pillars, Twelve Principles" framework for designing IUIs as "Existential Companions"; and (3) A critical design directive derived from user evaluations: technology in this context should aim for transcendence over simulation. The findings suggest that IUIs should create experiences that augment or surpass human capabilities, rather than attempting to simulate basic human connections, which can paradoxically deepen loneliness. This research provides a clear, user-centered path for designing technology that serves not as a "tool for dying," but as a "partner for living fully until the end".
翻译:本研究探讨了智能用户界面(IUI)的设计,以应对临终个体深层的存在性孤独。尽管人机交互(HCI)已在‘死亡技术’领域取得进展,但当前研究多聚焦于数字遗产管理等实际层面,忽视了那些在孤立中面对死亡者的主观存在性需求。为填补这一空白,我们对14位孤独的临终个体进行了深入的定性访谈。我们的核心贡献包括:(1)一个基于实证的模型,阐明了这一群体复杂的心理、实际、社会及精神需求;(2)作为‘存在性伴侣’的IUI设计框架——‘三大支柱,十二项原则’;(3)从用户评估中得出的关键设计指导:在此情境下,技术应追求超越而非模拟。研究结果表明,智能用户界面应创造能够增强或超越人类能力的体验,而非试图模拟基本的人际连接——后者可能反而加剧孤独感。本研究为设计技术提供了一条清晰、以用户为中心的路径,使其不作为‘死亡工具’,而是作为‘直至生命尽头充分生活的伙伴’。